me finding out about ic

Hey everyone my name is Alexis I Have started this blog due to the life i live i have this horrible life long health issues! I am a mother to 3 beautiful babies and I'm blessed i could have them. 3 years ago i got told i had ic or aka painful bladder syndrome. i had 19 ulcers along my bladder when i got diagnosed. Me and my fiancé had no clue what this was going to do or how much worse its going to get. When i was a little girl my issues started right after i started having periods i started having bladder infections but no bacteria hospitals told my family i was crazy and to take nsaids and Tylenol for the pain if it was that bad. i lived on those off and on until 2010 when i got deathly sick from them hives breathing issues gushing blood that caused transfusions. that was 12 years ago i then got pregnant 3 years later after i was told i could never have kids because I don't make a hormone which is why i started having periods so heavy and all. well when i was 16 i started having issues with peeing to where i had retention and was in the hospital more then once i was pregnant at 16 i had my first at 17 it effected my sex life i thought pain was normal with sex up until recently but we will get to that in a little. when i was 17 i has a septic infection in my bladder but no doctor would say why they would just give antibiotics and do blood testing and urine and say im to young for a bladder issue. then i had cancer and needed chemo which is when everything got worse i had stage 3 melanoma. We beat it though even though i was barley 90 pounds after My infections didn't stop though no matter what i did i was in and out of er and doctors. it took until i was 23 to get answers and see a specialist. as a teen i did webcam modeling i had a high sex drive i was able to push through the pain because thats all i knew and it made me feel good i was able to shut it out and enjoy my self when everything else didn't distract me from it. I regret it but i miss it! the things people dont tell you about ic is the kinda infections u get and dont know about. or the constant stabbing pain like a needle going through ur urethra and then though out ur back kidneys and all the puking the nausea from it. People dont understand this unless they live with it. When times get hard the only thing that keeps me going is my babies and man. what ic is Interstitial cystitis. it causes urgency pain infections no infections but antibiotics help the pain sometimes. extreme depression and anxiety. but why not add other issues to that. i have something called vulvodynia plus auto immune issues and post partum depression when u have ic u normally have other things there's people like me that pee out a special type of plasma that is connected to other pain issues. ic has tooken my life from me its taken the fun girl and made me angry i cant have sex with out peeing blood or anything. just being kissed and in the mood effects it. ic has taken me being able to jump on a trampoline with my babies away unless i wanna wear a diaper unless its a retention cathing day. i feel alone when im not i have friends and family but they don't understand this. this is more of me venting and hoping you don't feel alone. when i was 23 they did testing and found out i had this but there isn't much info still about it or a cure or anything that really helps. everyday i don't know how its going to be. i want my happy life back ith minimal pain so i can enjoy driving and traveling and be with my babies there's day i don't get out of bed i am a work aholic but i had a total hysterotomy july 7th and that alone hasn't been easy to heal from plus the ic and having issues. when i was doing fertility treatment for our son i ended up getting a special infection and it is still here in my body i live on antibiotics and pray i don't get a fever. The kind of infection is klebsiella pneumoniae its a rare hard to get rid of infection i have done injections iv antibiotics and it never worked due to my allergies im limited on what they can use on me. this has taken not only my life but who i am. between ic and having endomitosis and the hysterectomy  i wanna just cry and hide. i miss who i was before having my 4 year old thats when it got so bad i was begging for help i was a 22 year old who didnt know what it ment and still dont im learning about this everyday